A Landmark Moment: Launch of the New Zealand Brain Tumour Trust
On September 13, 2019, the Hutton Theatre at Otago Museum played host to a milestone event in New Zealand’s health advocacy landscape—the official launch of the New Zealand Brain Tumour Trust. Recognising the need for patient and research support in New Zealand, we started working on the trust in 2016 and achieved charitable trust status in October 2018. The first to be incorporated in New Zealand after years of quiet planning,
The Trust was established to provide a national voice for people affected by brain tumours, promote education and awareness, and fund research aimed at improving outcomes for patients and their families.
The launch drew an audience of clinicians, researchers, advocates, and community members, united by a shared commitment to tackling one of the most challenging and under-recognised areas of healthcare. Among the distinguished guests were Hon. Dr David Clark, then Minister of Health; Dr Chris Jackson, leading oncologist and then Medical Director of the Cancer Society; Rachel Brooking, community advocate and now Member of Parliament; and Sir Richard Faull, internationally renowned neuroscientist.
Pratika Lal, who hosted the event, has used her experience to become a positive inspiration to other women battling breast cancer. Her personal victory against cancer has led her to create the Melbourne based charity- Treasure Chest. (Pratika has successfully overcome her battle with breast cancer – twice). Poignantly, breast cancer is one of the most common cancers to spread to the brain.
Their presence underscored the importance of collaboration between government, clinical experts, patients, and research communities in addressing the complex realities of brain tumours.
A Call to Action
Brain tumours are among the most devastating cancers, often associated with high mortality and profound impacts on quality of life. Speakers at the event highlighted the urgent need for improved access to treatment, better data collection, and enhanced support services for patients and their families.
Dr David Clark reaffirmed the government’s commitment to equitable healthcare and acknowledged the vital role of advocacy groups in driving meaningful change. Dr Chris Jackson spoke passionately about the clinical challenges and the importance of research in developing new therapies, while Sir Richard Faull inspired attendees with his vision for advancing neuroscience and finding hope through innovation.
Putting Patients First
The Trust’s mission was clearly articulated during the launch: to amplify the voices of those affected by brain tumours, provide education and resources, and fund research that could lead to breakthroughs in diagnosis and treatment. Ahmad Taha. neurosurgeon, shared heartfelt stories that illustrated the human side of the statistics, reminding everyone that behind every diagnosis is a family navigating uncertainty and hardship.
A Future of Collaboration and Hope
The atmosphere at the Hutton Theatre was one of determination and optimism. Attendees left with a sense of shared responsibility and a commitment to action. The launch was not just an event—it was the beginning of a movement to ensure that brain tumour patients in New Zealand receive the care, support, and hope they deserve.
As the NZ Brain Tumour Trust continues its work, the legacy of this day will endure as a catalyst for progress. By fostering collaboration and amplifying the voices of those affected, the Trust aims to transform the future of brain tumour care in New Zealand.
